Friday, April 8, 2016

The most perfect post on Dillan

Somebody at Ollibean gets it...as far as I am concerned.

http://ollibean.com/2016/04/02/apple-celebrate-autism-acceptance-month-with-dillans-voice/


Dillan is a non-verbal autistic who speaks through an iPad. Although the likes were in the tens of thousands, there were thousands of "dislikes" on the page here : https://www.youtube.com/watch?v=oMN2PeFama0&nohtml5=False, and comments had been disabled. Was that because of the cruelty of people who view autistic people as defective, or because of activists who find his truth, that "autism is hell", offensive?  The former would make me sick, but the later do, also.

http://www.apple.com/autism-acceptance/#watch-the-film 

Most people don't know what autism, non-verbal autism, is.  It has been portrayed in the media as frightening, in science as "lacking quintessential human qualities".  This video shows humanity. I think that is a step above awareness, above acceptance. I think it is remarkable. 


4 comments:

Adelaide Dupont said...

Raggette:

Vive la humanité!

Of course I consider non-verbality a very ordinary and everyday thing.

How we verbalise directly so few of our internal experiences.

Externally it is not greatly encouraged.

And we respond/react to Dillan ... how?

Usethebrains Godgiveyou said...

Adelaide:

This may sound a little ignorant. People must be taken gently into the autism arena, those who are unfamiliar with it. Or the "fear mongerers" will decide the script.

Maybe you are saying you are non-verbal, I don't know. Does it matter?

I have 9 brothers and sisters who have no idea what non-verbal autism is. Should I punish them for their ignorance? No...I was where they were before I became a teacher. It is not entirely common for everyone. People can't be expected to automatically understand something they have no previous introduction to. They have my son's PDD-NOS. They have an intro into Autism. I think, seeing Dillan, and this is selfish, helps them to see that humanity, and what it means to be human, is a living study in uniqueness. By seeing Dillans story, I think they can understand just a little more what difficulties Ben may have had, and still may have, in some ways.That is my first thought. They can see that it can be a struggle, and that it can be easily misunderstood, what is going on, because of "observable behaviors". It's like the saying, you can't read a book by it's cover.

Secondly, I know some may see his story as "inspiration porn". I find that dismissive. Allow me to quote Camus. “The evil that is in the world almost always comes from ignorance, and good intentions may do as much harm as malevolence if they lack understanding.” I don't feel there is anything in Dillans videos that don't lead to understanding. A picture is worth a thousand words, and this is thousands of pictures.

Lastly...whoever did the films had an artistic flair. I think, and this probably relates to my second point, that art, that the humanities are a shortcut to human understanding. Science is mostly full of @#$! most of the time, especially in regard to understanding autism. Art heals, art bridges gaps, art teaches.

But, in regards to the star of the show...Dillan's coming out is exciting. I have a student I taught with such severe CP I may never see her coming out...she is 18 years old, and so involved it is almost impossible to attempt, all her other teachers gave up. Her mother is somewhat reticent, she can't do it by herself...and I have tried to help over the years, to no avail. I'm not sure there is a way...but I saw her intelligence beyond her disability. http://accessiblewisdom.blogspot.com/

Sorry for the novel.

Usethebrains Godgiveyou said...

What are your thoughts?

Maddy said...

Indeed. One of my sons is also visually impaired. I can hardly believe some of the comments people write / speak on some of his online forums. Its a tough world for all teens these days.